Feedback From Our 2025 Conference

We asked attendees from our 2025 virtual conference what their most valuable takeaway was. Here are some of the responses that we received:

"Understanding that POTS is really not that rare and that there are so many others all going through this with not a lot of knowledge. Opens the door for better conversations and understanding. Loved this conference!"

"Knowledge and seeing and understanding I am not alone in this."

"There is hope and there can be change. I have things to try and to advocate for. I haven't exhausted all of my options and I am not alone. I'm going to keep fighting for care and research."

"There is a lot of wonderful information to be shared and learned. Also, a great group of people creating change within the community. Inspiring and hopeful for all of us."

"That the chronically ill community deserves a place at the table. We deserve to be seen, listened to, and cared for."

"That there is a big lack of understanding and knowledge from people outside the community about what it is to have and live with a chronic condition. There are a lot of challenges that people in the community faces that are hard to explain, understand and see by other people."

"There are people out there who are passionate and who care!"